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Brothers
and sisters
Hello
Michele. My name is Susanna, I am 25 and my brother Jacopo
is 29.
Jacopo has Down’s Syndrome. I read your mail and I
understand your doubts, also about the future relationship
between Sofia and her sister. I want to tell you my story.
When I was born, Apo (that’s his nickname) was already
4. He was very jealous of me, and he’s been like this
for many years. On the contrary, as I grew up I became very
protective towards him. My mother told me that when I was
4 I used to reproach our neighbours’ daughters because
they wouldn’t say hello to him.
I used to kick up an awful row by the front gate as I met
them!
And I did the same to her. Once she spanked him and I started
to scream: how dare you beat a handicapped child?!!? I was
5, and I had already understood that Apo was not normal,
he was special.
My father left us, and that was tough for Apo. He sat on
a chair by the door for 15 days waiting for him to return
and burst into tears by the time he used to be back home.
He was 12, I was 8.
But then, of course, “mongoloids” do not have
feelings, do they?!
My problems started when I went to secondary school.
I was ashamed of my brother, I hated to hear my schoolmates
talk about how good their so-called normal brothers and
sisters were.
I began not to put up with my brother anymore, I thought
I hated him.
My recurrent thought was: if a boy knows I am the sister
of a mongoloid, will he go out with me?
I also used to beat him, because of the anger I felt for
him.
Meanwhile my mum had cancer.
Having no relatives, I had to take Jacopo to the gym, to
the church etc.
He was always with me.
This crisis of mine lasted till I was 15.
A year later my mum died.
We were left alone, me and him.
By now Jacopo lives in a residential home, I live with my
fiancée.
My mother left me some property, but the most precious inheritance
is my brother Apo.
We meet regularly, he adores me, I adore him.
He is the only one for whom I would kill.
When I feel lonely, I think of him and I feel better.
He will always be there, he will always love me no matter
what I shall do.
Now I am also his tutor. Nothing special about it…
Don’t worry about Sofia’s sister.
Maybe one day she’ll also be “ashamed”
of her sister, but I guess adolescence is the age of stupidity
(…so we say).
She will realise that she has a different, special sister,
she will learn to love her because there is no other way.
Lots of love and kisses from me to Sofia.
Susanna
October 15th 2002
Our experience
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